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I NEED SOMEONE TO SAVE MY LIFE
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My name is Yvette and I am 12 years old. Until the beginning of 2004 I was an ordinary 10 year old. I went to school, played with my friends and did most of the things that 10 year olds do. Life was great. I was looking forward to finishing primary school and going up to secondary school 1ater that year.
Then I became ill. I started getting tired - very tired. What was happening to me. My lips and gums bled sometimes and I just kept on getting tired. My mum took me to the doctor. After a blood test I was called and told to go to the hospital as soon as possible. I was admitted and had lots of tests. March 18 2004.
After a few days I was told I have Aplastic Anaemia. What is that? Well my bone marrow has stopped working properly. I was given someone else's blood and platelets because I couldn't make enough of my own.
I have been in hospital twice for treatments to try to make me better. They didn't work and I had a bad reaction and was very ill. I was so weak that I needed a wheelchair to get around. My bone marrow wasn't working properly and the doctors couldn't make me better, even though they were very nice and worked very hard. The people at the hospital looked after me really well and were very kind to me - but they couldn't make me better.
If you are thinking that I look well today then I thank you, and my mum for helping me with my makeup. I may look fine on the outside but on the inside all is far from fine. You see my bone marrow doesn't work properly and I am not getting any better. I am still getting other people's blood and platelets and so many different medicines you wouldn't believe. I go to the hospital nearly every week.
I am also neutropenic. That means that my immune system doesn't work. I can easily get an infection and because my body cannot fight it I need to go to hospital. If I do not get to hospital quickly or if I get a really bad infection I may even die. I'm not allowed to go to school any more. I can't do the things that other 11 year olds do. I missed the end of primary school and I have never been to secondary school. All of this because my bone marrow doesn't work properly.
I need new bone marrow. But that is not something I can buy at the shop - unfortunately. I actually need a bone marrow transplant. But there is another problem. I have a very rare tissue type. You could say I'm almost unique. But I wish I wasn't.
If anyone can help me to find a bone marrow that matches mine then that may help to make me better. Please help me if you can or know anyone that can.
If the medical people cannot find a match to give me a bone marrow transplant then have no hope. Please help me to have a future.
Thank you.
Those are the words of 12 year-old Yvette Gate, who has just helped launch a National Blood Service campaign aimed at saving her life and hundreds of others who come from ethnic minorities in and around Bristol.
The Bedminster youngster, whose family originates from the Gambia, was diagnosed with the condition Aplastic Anaemia in March last year, which means her Bone Marrow no longer produces enough red blood cells and platelets for circulation.
Aplastic Anaemia a life-threatening condition and the only cure is a bone marrow transplant, but there is not enough Bone Marrow or blood donated by people with her genetic background.
As a result, she faces a perilous future.
Statistics show that out of six per cent of people in Britain who give blood, more than 97 per cent of them are from white backgrounds.
The problem has inspired the National Blood Service (NBS) to start a new campaign called OneBlood, which hopes to convince people from black, Asian and other diverse communities to come forward and donate blood. The ACLT is also heavily involved in helping to shape the OneBlood campaign in order to help the National Blood Service to get more Blood and Bone Marrow donors from the Black and BME Community.
Most importantly for Yvette, it hopes to encourage those same groups to sign up to the British Bone Marrow Register (BBMR) which opererates under the domain of the National Blood Service.
Compared to the percentage of bone marrow donors from white backgrounds, the figure for smaller communities in the UK remains extremely low.
Yvette's mum Mary said: "We are so happy to be part of this campaign because no one can know more than us how important it is.
"What we have been through as a family in the last year has changed our lives forever, and it's an amazing tribute to Yvette that she is really the one that holds us all together.
"When we are down, it's her that makes us laugh, its her that picks us all up and puts us back on our feet. I can't imagine life without her. "In the main, it's a very difficult thing to talk about, but if there's any chance that by being part of this campaign we can inspire just one person to come forward, it's worth it.
"People may not know it, but everyone has it in them to save a life and for those in Yvette's position it's essential that message gets across."
Yvette, who wants to be a singer and an actor when she grows up, was due to start at secondary school at Ashton Park last September, but was not well enough and with the high risk of acquiring an infection, she has a home tutor. Yvette hasn't had the chance to meet her new class yet, but they were joining her for the launch of the new campaign today.
She said: "I don't like to talk about it really because there's nothing to say in some ways.
"I need this transplant, but at the moment they can't give me it. I just hope someone comes forwards to help me and the other people I've seen at the hospital.
"The worse bit for me is if I start bleeding because I need a transfusion. It comes out of my lips and gums and it's not very nice. I'd like it to stop, but you have to just get on with it and I'm close to my family, so we get through ok."
There are many reasons that people from ethnic communities do not give blood.
National Blood Service research shows these can range from suspicion of the health service and authorities to religious beliefs as well as general unawareness of the NBS itself.
There are also illnesses, such as sickle cell anaemia and certain leukaemia's, that are more prevalent in black and Asian communities and all of them require blood transfusions or bone marrow transplants to save those people's lives.
The problem that Yvette and her family face is even worse than it could be because in about 30 per cent of cases a sibling is an ideal blood and bone marrow match, but Yvette has extremely rare tissue and her big brother Solomon was not found to have the same.
Because of the vast numbers of tissue types, trying to find a suitable match can be very difficult. It is therefore vitally important that there is a good mix of potential donors to help find a suitable match.
Some tissue types are much more common in particular ethnic communities, meaning that a patient is more likely to be matched with a donor from a similar ethnic background.
David Chandler, communication officer for the NBS, said: "The proportion of blood donors from different ethnic groups is growing, but we still need to increase the number of ethnically diverse blood donors with a view to increasing the potential pool of bone marrow donors too.
"Yvette has a very rare tissue. Generally someone from the ethnic community is more likely to provide a match.
"There will be a better chance for her if there are more people on the register."
Mr Chandler believes there are a number of reasons why black and ethnic minorities aren't blood donors.
He said: "A lot do think it's a good thing but their level of awareness is not there.
"Also it is something that is not part of their culture.
"Our campaign focuses on more awareness particularly on the fears of becoming a blood donor.
"We are approaching influential people to work within their communities to get the message across.
"We will try to attend local events for ethnic communities to encourage them to sign up."
To become a bone marrow donor it is necessary to have given blood at least once. At this time an extra blood sample will also be taken and the details held on a database.
Further tests would then be carried out if a person appears to match someone who requires a donor.
The NBS supplies blood to 310 hospitals across England and North Wales. There are 1.9 million blood donors on the register, donating over 2.4 million pints of blood each year. However, currently only 6 pre cent of the eligible population give blood. The NBS loses 15 per cent of donors each year through retirement, relocation and ill-health so it is essential that new donors come along to their local sessions.
To become a blood donor you must be aged 17-60, weigh over 7st 11lb and be in good health.
For further information on becoming a blood donor call the National Donor Helpline on 08457 711711 or log onto
http://www.blood.co.uk
To join the BBMR you must be aged between 18 and 44 and be a blood donor. You can join when you next give blood, or even at the same time as your first donation.
http://www.yvettegate.co.uk/